“Patients must be involved as much and as meaningfully as possible in order for health research to be more responsive to the needs of Canadians.”
This framework has just been released by Canadian Institutes for Health Research(CIHR)as a guiding document for patient oriented research. It establishes key concepts, principles and areas for patient engagement to be adopted by all SPOR partners, with the overall vision that patients (inclusive of individuals with personal experience of a health issue and informal caregivers, including family and friends), are active partners in health research – leading to improved health outcomes and an enhanced health care system. The framework will be shared with SPOR stakeholders to promote and inspire a common understanding and alignment of goals for patient engagement.
Because I have been involved in a SPOR initiative as a family member, I was one of the many patient representatives from across the country invited to provide input and help shape the framework. I would like to applaud CIHR’s inclusive approach and the resulting framework! I look forward to hearing about many successful SPOR projects in the future.
Be one of the first to have a look. What are your thoughts about patients as active partners in health research?